BAD NEWS

 Tuesday 15 June 2021 A bit of a blow Knock me sideways K E R P O W ! ! !

OK so last month everything was going so well. My CA125 was coming down from 400 to 134 NICE ! indicating that the cancer was under control. This month IT'S NOT WORKING !!!

My CA125 has started to go up again and it is at 254.....not good. The reality is that my white blood cells as in neutrophils are 1.1 and they need to be a bit more over 1 to go ahead with treatment. There is what the doctors call a progression of cancer in my liver from 1.5 cm to 2.1 a 6 millimeter increase in size and also its growing in my spleen too but they did not have specific measurements. There is a new cancer on my peritoneal. The good news is that the original site of the cancer remains 'unchanged', is stable inside my pelvis including the ovaries and fallopian tubes.

So this Caelyx drug did work for a while and stabalised the cancer and sent my CA125 downwards but then this last month it has started to grow again. I was ever the optimist and was looking forward to planning my next 3 months of work on a treatment I knew my body could handle pretty well without too many horrible side effects. Now of course it is like I have to start again with a new treatment and I don't know how I am going to react to it. Start Again.....Into the Unknown.....

I have agreed to have a new drug called Gemcitabine. I have it once a week for 3 weeks then I have a week off then start the cycle again for 3 cycles then they will do another scan and see if this drug is working. It takes about an hour for the drug to go through the cannula.

Right I'm off to research Gemcitabine and see what nasties I have in store. Apart from the normal fatigue and nausea with reduced blood counts the only side effect that was mentioned was a kind of fluey achey pains kind of thing.