Sunday, April 18, 2021

Climate Change Exhibition Stop! Act !


 

 Glijufrabui Waterfall Iceland Photo by Dave Pearl

 
 https://mailchi.mp/0562cec7657e/climate-change-exhibition-stop-act

Second Caelyx Treatment

 


Sunday 18 April

Day 3 after treatment and all is good. No headaches, no nausea, a little underpar energy wise, some rosy cheeks but basically feeling good and positive about the possibility that I can carry on with my life AND have cancer treatment.

In the consultation I had before my treatment I found out that my bloods were in good shape. I discovered that my CA125 had come down to 400 ! ! ! The last I heard was that it was 130 something. So between the 19th February and the end of March it had shot up to over 600. It was a period of realising that the Avastin was not working but my blood pressure was too high to have any new treatment so I had to postpone everything. What a relief to know that the chemotherapy is working. Now I can think about the future at least for 3 months of it anyway.

Last month I had a tricky time. The first week after treatment was not so bad, a little nauseous and a little fatigued but not too bad. Then I had my second covid injection that sent me to my bed with achey limbs and fluey symptoms. The next day I was fine. Then followed two weeks of headaches. I'd wake up at 5 or 6 with a vice like grip of headache that would eventually fade by about 12 noon after taking paracetemol and neurophen and being upright. I was convinced it was the covid injection, then I remembered how the first blood pressure pills had given me a headache DOH!

So I got myself a lower dose of ramipril (2.5 mg instead of 5mg) and as if by magic the headaches went away. These last two weeks coincided with my lowest point in the cycle in terms of my red and white blood counts and vulnerability to infection. My last week before the next treatment I was absolutely fine.

Onwards and upwards and the sun is out and the spring is here. I am planning my filming days for Odan y Wyneb / Under the Surface to happen at the beginning of June. I'm off to Scotland to do a live stream performance in the middle of May. Life is suddenly looking more interesting with some shape to it. Lockdown is slowly easing though I am aware I still have to be very careful.

Sianed 13/8/59 - 31/1/2022

We are sad to say that Sianed died yesterday 31 January. In accordance with her wishes there with be a celebration of her life, probably in ...