Tuesday, February 2, 2021

Exhibit Tendancies

 Tuesday 26 January 2021

A telephone consultation with Dr Quinton. My bloods are back to normal We Hey ! BUT I have a problem with high blood pressure. The thing is, it is a known side effect of the Avastin maintenance drug. The plan is to have a lowering of blood pressure pill given to me on Friday and hopefully that will help the protein in the wee as well (or have I misunderstood that bit?) My kidneys are complaining!

The bad news is that the cancer marker CA125 has started to go up rather than down. 6 weeks ago it was 11 then 3 weeks ago it was 17 and yesterday it was 33. It is still within the normal range but you have to ask why is it going in the wrong direction? I am going to have a CT scan on February 25th to see what is going on.

A telephone consultation with the thrombosis clinic. They are happy with my bloods and are going to half the dose of apixaban. We talked about my bleeding gums and he is going to put a special mouthwash on the prescription. Must not do it at the same time as brushing teeth as it reacts badly to toothpaste! ! ! ! (green teeth anyone?) Another 6 months of a lower dose

Friday 29 January 2021 

My blood pressure was definitely too high this time and the protein in my urine was no longer a trace but up to level 3 and you can't go higher than that! So I spent some time waiting to see a doctor and then waiting for the doctor to get hold of the consultant and then after a long while I was told to go home. I was given the blood pressure medication which is Amlodipine and told to come back next week to get a 24 hour urine collection bottle so that they can test it in a more sophisticated manner and see how bad my kidneys are.

So what happens if my body cannot handle this drug anymore? Well there are other immunosupressant drugs I can try. So this is not the end of a line, something I was quite pleased about. When I first heard of a year of 3 weekly maintenance drug sessions I was appalled but now I am terrified at the thought if not having something that suppresses my cancer! How time changes everything.

I have now 3 weeks to possibly feel like 'normal' what ever that is. The oxygen in my blood is 100% How cool is that ? Added to that I have been given the first dose of the covid vaccine.


1 comment:

  1. You're right, time does change everything and its amazing how something that seems crazy weird and extensive can suddenly become normal and reassuring! One thing that doesn't seem to alter though is your wonderful positive attitude and your courageous spirit! Keep going, amazing lady!

    ReplyDelete

Sianed 13/8/59 - 31/1/2022

We are sad to say that Sianed died yesterday 31 January. In accordance with her wishes there with be a celebration of her life, probably in ...